I posted so many pictures that you have to go to the bottom of the page first and click on "older posts" to see the first set of pictures and really see exactly what the progression of her hemangioma was like. Sorry, it's just been a really long time:)
Also for those who would like to remember Nicholas's journey, his first year is posted on http://www.coachsaade.blogspot.com/
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Hello
I just wanted to say hi,my name is Jen and I am the mom to Quinn who is 2 and has PHACES Syndrome. I found your blog doing a search and thought I would say I and tell you your daughter is beautiful!
I want to invite you to join the PHACES families message forum that I manage which is fantastic,the parents are so supportive and loving. http://groups.msn.com/PhacesAssociationSupportGroup
I also manage PHACES Families and the website is www.phacesassociation.com
You can learn more about Quinn on his we page which is www.quinduncan.com and his blog can be reached by clicking on my user name above this message.
I am also the PHACES family advocate for NOVA www.novanews.org and would love to help in any way I can. Feel free to email me anytime at
all4quinny @ hotmail .com (no spaces)
Hugs to you and your beautiful family.
Jen Duncan
Mom to Quinn
2 Years PHACES
http://themightyquinnduncan.blogspot.com
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